Wednesday, August 13, 2014
Not an Entertainment Director (Careful - this is a rant.)
Tuesday, August 12, 2014
The Rising Issues of Mental Health
Immediate Medical Assistance: 911
Crisis Call Center: 800-273-8255 or text ANSWER to 839863
800-273-8255 or text ANSWER to 839863
Twenty-four hours a day, seven days a week
http://crisiscallcenter.org/crisisservices.html
800-273-TALK (8255)
Twenty-four hours a day, seven days a week
http://www.dbsalliance.org
National Hopeline Network
800-SUICIDE (784-2433)
800-442-HOPE (4673)
Twenty-four hours a day, seven days a week
http://www.hopeline.com
Crisis Center and Hotlines Locator by State
http://www.suicidepreventionlifeline.org/getinvolved/locator
Suicide Prevention Services Depression Hotline
630-482-9696
Twenty-four hours a day, seven days a week
http://www.spsamerica.org
Thursday’s Child National Youth Advocacy Hotline
800-USA-KIDS (800-872-5437)
Twenty-four hours a day, seven days a week
http://www.thursdayschild.org
(855) 581-8111 (24/7) or text TALK to 85511 (4–8 PM every day)
Chat is available Mondays–Thursdays from 7:30 PM–12:00 AM
http://www.yourlifeiowa.org
Thursday, June 5, 2014
30 Things About My Life with MS
2. I was diagnosed with it in the year: I was diagnosed in 2014 after years of testing.
3. But I had symptoms since: If I look back, I’ve been having symptoms for 10-15 years now.
4. The biggest adjustment I’ve had to make is: Taking a break and learning to say no/ask for help.
5. Most people assume: that I have just hurt my foot or some other body part and it will heal and then I’ll be “all better.”
6. The hardest part about mornings are: Pulling myself out of bed. I spend about 15 minutes just trying to move to get my appendages to support my weight or pull me out of bed. So easy to just lay there.
7. My favorite medical TV show is: I don’t really have one. I tend to gravitate more to the fantasy/SciFi genre. If I watch anything with a “medical” piece, it’s CSI.
8. A gadget I couldn’t live without is: My folding cane. It helps me walk, reach things…and I can fold it up and put it in my bag when I don’t need it. I try not to rely on it too much. I have a wheeled/seat walker that I use for long outings, but I really couldn’t live without my phone/tablet. Keeps me connected and independent.
9. The hardest part about nights are: Trying to get comfortable. Either too hot, too cold, or the most comfy position starts to hurt, insomnia.
10. Each day I take 19 pills & vitamins. (No comments, please)
11. Regarding alternative treatments I: have tried whatever has come my way. I figure why not? Not everything works for everyone, but then what doesn’t work for one, may work for someone else.
12. If I had to choose between an invisible illness or visible I would choose: I’d stick with this invisible one. There are days when I wish I had something I didn’t have to explain, but then I have a pretty big mouth and can advocate and discuss.
13. Regarding working and career: I enjoy staying busy, but commuting to work every day is difficult. I continue because I need the health care and the paycheck, but someday, I’ll be able to retire and stay closer to home and do something I really want to do.
14. People would be surprised to know: that I fight with depression all the time. It’s a never ending battle keeping a hold on the spiral and staying moderately happy. Some days, my happy exterior is all done with smoke and mirrors.
15. The hardest thing to accept about my new reality has been: Not being supermom. I have to ask for help and accept that there are things I cannot do anymore and days when I can be great one second and horrid the next.
16. Something I never thought I could do with my illness that I did was: Fly in a zeppelin. Awesome fun.
17. The commercials about my illness: What commercials? There aren’t many for Multiple Sclerosis.
18. Something I really miss doing since I was diagnosed is: reading in the car and spending the day outside.
19. It was really hard to have to give up: doing things on my own. I loved being independent. Now, it is a rare moment that I can do things on my own.
20. A new hobby I have taken up since my diagnosis is: Photography. My diagnosis made me choose to do things now. I love photography, I will be taking classes on it to learn everything my camera can do, but I enjoy capturing everyday beauty and the odd things here and there.
21. If I could have one day of feeling normal again I would: Go ride roller coasters all by myself.
22. My illness has taught me: to slow down and take things in stride. It has taught me that there is no shame in asking for help.
23. Want to know a secret? One thing people say that gets under my skin is: having to explain what MS is. I get a lot of blank stares, weird responses, etc., it gets very tiring having to explain it all the time. Or, finding someone that “knows” what it is but getting “Oh, I know someone (my aunt, dogtrainer, etc.) that has MS, they cured it with xyz cure (gargling with magma, chewing twigs, whatever.) You should try that.”
24. But I love it when people: try to understand and step back and let me live my life. If I need help, I’ll ask, but I love it when people enjoy things with me instead of keeping me from it or hovering.
25. My favorite motto, scripture, quote that gets me through tough times is: Hope. I adore “The only thing stronger than fear is Hope.” I also love Dr. Seuss’s – “Say what you mean and mean what you say because those that matter don’t mind and those that mind don’t matter.”
26. When someone is diagnosed I’d like to tell them: Hang tough! It’s your life, live it your way.
27. Something that has surprised me about living with an illness is: The amount of things I can still do. Not to mention, all the information and learning out there. Even in the last couple years, advancements have been leaps and bounds.
28. The nicest thing someone did for me when I wasn’t feeling well was: be genuinely kind. Let me nap with no feelings of guilt so I could get back to doing.
29. I’m involved with Invisible Illness Week because: It’s only invisible if we keep it that way. Bringing it out into the sunlight will help advance our research and hopefully end the stigmas and bring a cure.
30. The fact that you read this list makes me feel: vulnerable but I’ll always answer truthfully about things asked. Otherwise, how else do we learn.
Wednesday, May 28, 2014
MS Impacts Us All
Tuesday, February 11, 2014
Fight the fights worth fighting!!!
Sunday, July 14, 2013
Okay, Okay, I know....
I thought I'd be ready for the actual diagnosis, but I was wrong. It hit like a ton of bricks. Mostly because I have to explain it to a lot of people. They have no idea what it is. Sigh.
I'm learning to live with it though. I have a great doctor. A great support system and I am learning to take it easy. Okay, two out of three of those are true.
It's hard stopping life and rejudging it for what you can and cannot do. But I'm trying.
Thursday, November 29, 2012
Book Review: Wool by Hugh Howey
Is Laughter The Best Medicine? | Yahoo! Health
Many laughs for you!
Is Laughter The Best Medicine? | Yahoo! Health
Thursday, November 15, 2012
Book Review: 50 Shades of Grey (or “The story of how I knew I didn’t care for the Twilight books/movies at all so why did I think I would enjoy this”)
Thursday, October 4, 2012
Over myself I think....
I want to throw stuff. Really just toss stuff around. Random things. However, I don't. For a couple reasons. First, I can't throw hard or accurately or for any distance - like that paper airplane you toss but lands at your feet? That's me with a ball some days. So, what would the point be?
Secondly, I'd have to pick it all up. Where's the fun in going batshit crazy for a period of time tossing things about if you are the one that has to clean it all up? You spend the time cleaning bitching about the mess you made. Oh, and if anything broke? Then you bitch at yourself about the money you now have to put out to replace something.
Finally? I'd wear myself out so badly that I'd hurt for a month.
It's so difficult to communicate with normals. They just don't understand. Not to mention those peeps that spend their entire lives complaining about this ache or that pain or the one's that ask you how you feel and when you tell them say, "Now you know how I feel" or "Join the club."
Uhm, no. No, I don't really. And you have no clue how I feel. I hate those sayings. Seriously, what a freaking cop-out and rude as hell.
NOW YOU KNOW HOW I FEEL or JOIN THE CLUB
Now you know how I feel? Why? You have MS/Fibro/Misc Neuro Condition, too? Wow. Awesome.
or...
Can I join the club? Will we get jackets? Are refreshments provided? I ask because my stomach has issues with some foods and I don't like the heartburn that comes after.
It's so hard to get people to understand how you feel. A really good friend linked me to a great article called "The Spoon Theory" by Christine Miserandino. Her website is www.butyoudontlooksick.com and is amazing. The article is a great way to explain how people with "invisible" illnesses live.
Honestly, if you know someone with Lupus, Multiple Sclerosis, Fibromyalgia, or anything like that, her site is a great place to get some helpful info about how to be supportive and thoughtful.
Misplaced "friendly" and "helpful" comments are often more hurtful to our psyches than many would think. It drives me nuts to be thought an invalid. I know what my limits are and I choose to accomplish what I can with what I have, but don't think I can't do anything. I can do whatever I choose to do. It's my choice. If I choose to do something and know I'll pay the consequences for it, it is still my choice.
Like the time I went to my son's high school play the day after a really, really problem filled, complication riddled spinal tap. I went in sweats, sat on a pillow, and was on major pain pills, but I saw my son and enjoyed myself. It made me happier to be there and watch him than it would have had I stayed at home, moped, cried, and lay in bed. It was my choice.
Also, don't assume because I say I am tired that I am done for the day. Again, this is my choice. I know that if I am running low, I can rest. I rest then resume my activity that I choose to do. Don't think I'm not going to finish or I'm going to "flake" on it and take it upon yourself to either finish it for me or make excuses for my not finishing it. Back off. I know my limits.
Yes, sometimes I go over my limits, but I know the consequences and honestly, I can plan for them. If I know that something like going to my kids' activities is going to tap me then I plan for a restful next day.
I have always been a bit anal retentive about calendars and planning things, but I find I am so much more like that now. I'm a scheduler and I really get pissy when someone or something, like my health, gets in my way.
Go check out Christine's site. Venture to the links. Think of it as a fun and educational vacation into knowledge. Even now, in my 40's, I try to learn something new everyday. I encourage it in others.
Thursday, June 14, 2012
Okay, I suck...
Whatever.
Let me tell you something, you random person that might one day read this...Depression sucks. Sucks fucking big time. Right now, I couldn't give a rat's rear end about who reads this and who doesn't. I also couldn't care less about most others right now. Right now, I have just about lost my faith in almost everyone in my life.
You have no idea. I don't even want to read right now. Nope. And if you knew me outside of the interwebz, you would understand how freaking serious that is. I love books. I love reading. Usually. But right now, I have no clue why I even bothered to charge my Kindle.
Screw Y Chromosomes. You guys just suck. Seriously. First of all, I don't really know one I can trust and count on anymore. I mean there might be a couple...like my dad....or this one friend... but I don't want to burden this one Y Chromosome with my issues because he has enough of his own.
I am not that hard to please. Honestly. Seriously. It doesn't take a lot of work. I'm fairly low maintenance. But FUCK, get with it.
Whatever
Bugger off friends that only want to be your friend when they need something. I have no issues with friends that have been there for you, and really need you. Feel that they can call you when they have a problem. BUT when they never call to say HI or Let's do coffee, or whatever...only to say, Hey, can you ...
Whatever.
Get a life, children that can't grasp it. Selfish little snots. Been there for you whenever you've needed me, but you can't be big hearted enough to even talk to me when I need you or adult enough to give others a chance. Go buy your own food and shit.
Whatever.
I've just about had it. I'm at the end of my thread. I have no patience left, no hope, no trust in others, and certainly, no faith in government. I need a cave to crawl into and just be alone for awhile. Maybe have a good cry.
Next person that asks me for something? Fuck off. I give up.
Too bad I am too damn responsible to just quit and run away. Heaven forbid I quit my job and take care of me. I mean, then I wouldn't be able to be your mall.
To those that may actually care, I apologize for you having to read through my rant and I'll get back to regular blogs soon. Maybe. I hope.
Wednesday, April 4, 2012
Still Proud to be A Honker Mom!
Places to Visit - Had to Share - Too Funny
I have been in many places, but I've never been in Cahoots. Apparently, you can't go alone. You have to be in Cahoots with someone.
I've also never been in Cognito. I hear no one recognizes you there.
I have, however, been in Sane. They don't have an airport; you have to be driven there. I have made several trips there, thanks to my friends, family and work. I live close so it's a short drive.
I would like to go to Conclusions, but you have to jump, and I'm not too much on physical activity anymore.
I have also been in Doubt. That is a sad place to go and I try not to visit there too often.
I've been in Flexible, but only when it was very important to stand firm.
Sometimes I'm in Capable, and I go there more often as I'm getting older.
One of my favorite places to be is in Suspense! It really gets the adrenaline flowing and pumps up the old heart! At my age I need all the stimuli I can get!
And, sometimes I think I am in Vincible but life shows me I am not.
People keep telling me I'm in Denial, but I'm positive I've never been there before!
I have been in Deepsh-t many times; the older I get, the easier it is to get there. I actually kind of enjoy it there.
So far, I haven't been in Continent, but my travel agent says I'll be going soon.
Personal Notes:
I have been in Cahoots. However, if I tell you about it, I'd have to kill you.
I've been in Sane so much that I have the t-shirt, key ring, and tote bag.
I've given up in Vincible - turned in my cape and mask.
LOL, hope you are smiling, too.
Smoochies,
DL
P.S. This is to loosen you up to a more serious post later. Sigh.
Monday, April 2, 2012
Bunnies and Buses
Hunger Games - Movie Review
Friday, March 30, 2012
Book vs. Movie
Thursday, March 29, 2012
Weird or Just Right
Thursday, March 22, 2012
Children - Lovable Midgets or Pawns? And Marriage - Civil Unions for Everyone!!
Phew - Technical Difficulties - Sigh
Okay, so after a few technical difficulties, I am back. Been a long couple months, but I am back on track. Woot!
Okay, I think I am back on track. Sigh.
So, you will start seeing my posts on a more regular basis. Even if it is just to check in and say hi!! The fact that I needed my daughter to help me figure this page/site out is actually embarrassing. But there it is. I will ask that you forgive any misspellings that spell check doesn’t catch in my posts. My neuro condition has a symptom of making me misspell words that any 3rd grader can spell. Sigh. Sucks, but there it is.
I have been working on my bucket list. My view is this: if I keep working on it, and keep adding to it, then I can’t waste away. I’ll have too much to do and those that know me know that I hate leaving a to do list undone. It drives me nuts. I have managed to chip away a few of my OCD traits over the years and it’s been good for me. Not worrying so much about little crap. Letting stuff roll. I tend to go by the rule of if I can’t fix it, I have to let it go.
I preach that there is always a way. It may not be obvious, but it’s there. You just have to find it. The harder it is to find, the more important the situation.
In another post today, you will get my first formal spewing of opinion. Trust me, you unlock that door, be careful what you let out. My inner bitch is a force to be reckoned with. She’s mighty nasty at times and rather difficult to lock back up in her box. Feisty Wench.
So, I do take suggestions. If someone has one of those 100 questions a day or pictures a day things, send it to me and I’ll try to do it on my blog. Let you guys see some of the eccentricities that run through my head. Wink! I know I am an odd duck, but I’m a cute duck.
Kick me an email, ask me a question, ask me an opinion, and I’ll give it to ya!
Smoochies –
DL